A RALLYING call has been issued for people to come and support a family fun day being held in Malvern to help a town girl who has a rare and painful condition.
The event this Sunday, May 26, at The Three Horseshoes, Poolbrook Road, is for Polly Mills who was diagnosed with Aicardi Syndrome.
The condition affects only girls and only one in 120,000 children.
It means Polly, who is four, is very slow to develop and may never walk, talk or feed normally, among many other things.
She will also have a limited lifespan and normal childhood illnesses can be life threatening.
The event on Sunday will raise funds for Polly’s family whose life has been turned upside down by the devastating news.
Mum Amy is no longer working as she is Polly’s carer and dad Oliver had to leave the British Army.
His job in the forces meant moving around every couple of years and, because Polly needs a lot of treatment from professionals on a regular basis, the lifestyle would not be feasible.
The cash will be used to provide a stable family environment and to help make the adaptations for the household to create a safe usable home for the three of them and big sister Nancy.
Limited NHS budgets also mean some therapy, equipment or treatment either will not be available or will have long waiting lists for it.
At Saturday’s fundraiser, from 2pm to 5pm, there will be a bouncy castle, face-painting, a princess and hero meet and greet, barbecue, disco, party dances and games and a raffle.
A family holiday in Devon will also be auctioned off at 4.30pm.
Amy said: “We are determined to make her as happy and comfortable as possible and do as much as we can with her whilst we still can.
“Any support will mean the world to us, Nancy and little Polly Pocket.
“We want the best life we can give her and to make memories Nancy can treasure forever.”
For more information visit the Family Fun Day Facebook Page or call The Three Horseshoes on 01684 567120.